Taking charge of medical care!

This week we were reminded that Williams's care and well being is not really the primary interest of all physicians. Our pediatric neurologist reccomended that mom get a genetic sequencing test. The amount of red tape that we had to cut through was unbelievable. First, the multiple physicians did not communicate and therefore no one could figure out how to get a blood sample to the proper facility. Next, two physicians failed to read the medical records properly. Their failure caused much undue delay and upset my wife. The end result was that I was forced to be very aggressive and demanding to get the tests. It's unfortunate that results were only obtained after I yelled. I wish yelling was not necessary to get people to do the jobs they are tasked with.