Saturday, March 24, 2012

William is home

Hooray! William is home from his 12 day hospital stay. We are so glad to have our little buddy home. He seems glad to be back too!

Sunday, March 18, 2012

William is excited to see Papa

Papa came to visit and watch some basketball with William yesterday while mom and dad went to dinner. William loved hanging out with his Papa!!

This picture was taken when Papa first arrived at the hospital. Happy happy boy!!

Thursday, March 15, 2012

William update

William is having a better day. We were able to resume g-tube feeding. He has more energy and is smiling again. He continues to struggle with deep secretions. It looks like he will be in the hospital until he no longer requires deep suctioning.

Wednesday, March 14, 2012

Another hospitalization

William came down with a cold that rapidly progressed into an upper respiratory infection. His oxygen levels were poor, so he was admitted to the hospital. He continued to decline and the worst possible thoughts crept into our minds. I am hoping he improves, but the doctors said he will likely get worse before he gets better.

We are fortunate to have my mom's help taking care of Juliet. Juliet struggles to stay entertained in the hospital room. Having Nema's help allows us to focus on Will.

Update: Will's condition has not significantly changed over the past 24 hours. He is on antibiotics. Deep suctioning is required every hour. One of the blood tests revealed elevated liver enzymes. A follow-up ultrasound of the liver was normal. The physicians decreased the flow of oxygen and are starting to give him food through the G-Tube. Mom has spent most of her time at the hospital while dad takes the early evening shift to give mom a small break. Mom returns late to allow dad to work and get some rest. She spends the night at Will's side. Mel is such a wonderful mom.

Sunday, March 4, 2012

Sitting upright.

Over the course of the past two weeks, William has increased his ability to sit upright (with vertical and lateral support).  He can sit for up to 30 minutes without choking on his own secretions.  This is a big increase from last month.  Previously we had to lay him down after 5-10 minutes.  He really likes sitting and looking around.  He also loves watching to see what Juliet will do next.  He finds her funny.  William has the same laugh as Grandpa Jim.  HA!

Nema and Papa have graciously volunteered to give us a night off in March.  We are excited to have a night out.

Friday, March 2, 2012

Genetic Counseling Presentation

This is a nice seminar on the Genetics and Genetic Counseling.
http://www.youtube.com/watch?v=JvkvkzBjk3A&feature=share