We are now nine months into this journey. The following is a list of essentials.
1. Get a good neuro-muscular specialist.
2. Get a pulmanologist.
3. Fire any doctor that is not aggressive.
4. Get a suction machine.
5. Get a sleep study.
6. Get a pulseoximeter.
7. If your doctors are not aggressive with colds, then get a new doctor.
8. Get in touch with MDA.
9. Get in touch with the Joshua Frase Foundation.