Newsletter Article

The Centronuclear and Myotubular Myopathy Information Point Newsletter included and article about Where There's A Will There's A Cure!!

Check it out!

http://centronuclear.org.uk/theinformationpoint/newsletters/2012/2012_3/where_theres_a_will.html

Kickoff Fundraiser

The Kickoff Fundraiser for Where There's A Will There's A Cure was this past Saturday (11/17/12) and it was a great success!!  We really could not be happier at how everything turned out.  It was wonderful to have so many of our friends and family in attendance. We are so blessed to have an amazing support system. 

We were very honored that Dr. Childers was able to attend our kickoff fundraiser. He gave an extraordinary presentation! His presentation included videos illustrating the medical research that we are supporting. It is amazing to think about clinical (human) trials. Imagine what this could be for our children affected with MTM, for William. Imagine the increase strength for breathing alone. It could actually save lives. We hope our guests were just as amazed and motivated as we were by the presentation! 

It is incredible to believe that the science to possibly saving our son's life is actually there and just needs the funding. We are excited, motivated and driven to save our son and others like him. We are thrilled that so many of our supporters are with us. We look forward to adding more faces to our Will Power page on our website!!  

http://www.will-cure.org/#!will-power/c1on7

New Bed

William's new bed was delivered today! Big sister is checking it out.

It will be nice to lay in bed with William and read his favorite books! Brown Bear, Brown Bear, The Little Blue Truck books and Dr. Seuss books are his current favorites!!

Play-doh

William is learning how to play with Play-doh from his big sister. I love how he watches and learns from her.

Dr. Whiston

We are thinking that Juliet could have a career in medicine, if she is interested. She knows a lot of medical terminology for a three year old.